Last modified: 2022-08-30
Abstract
The presentation is going to comprise of two parts: The first part will be about the role of the nurse in management of women and girls with inherited bleeding Disorder (IBD) in a comprehensive care centre. The role of the nurse within the multidisciplinary team is to provide educational and emotional support to the women and the facilitate and coordinate person-centred care. This will be followed by presentation of an audit that was carried out on antenatal thromboprophylaxis in a single centre. Over the recent decades, there is increasing focus on women with inherited bleeding disorders (WBD) which has brought more patients into Haemophilia Treatment Centres (HTC) around the globe. These women require input of a multidisciplinary team to improve outcomes in their gynaecological and obstetric care. Nurses play a pivotal role in patient and family education and in the coordination of the multidisciplinary team. Carriers of Haemophilia and women with IBD experience heavy menstrual bleeding, bleeding from dentistry, surgery, injury or childbirth. Symptoms are treated leading to full and active lives. The nurse is often the point of contact for women who are pregnant, to organise and schedule attendance at a multidisciplinary clinic. The nurse is able to offer regular monitoring of the outcome of interventions in an ongoing relationship with the woman.The number of WBD in HTC has increased and the nurse should play an active role in outreach and education in the developing world where the numbers of identified WBD falls further below the expected numbers based on prevalence.
Keywords: thromboprophylaxis, pregnancy, risk factors, nurse role, adherence
DOI: http://doi.org/10.24086/biohs2022/paper.809